Среда, 6 декабря 2017 года
Yesterday, like today started early.
Yesterday I knew there’d be Xanax before breakfast and since my neckline was due to be placed and I wouldn’t have much more opportunity for a long hot shower and to wash my hair while I still have it and soap and Xanax and water don’t bode well. Some good planning there.
FYI: Xanax is the shiz.
I needed help getting to the little theatre across the hall, and a wheelchair assisted me to the x-ray department as I wasn’t fit to be walking anywhere, so the placement was checked and AOK.
Why? This particular neckline is placed to harvest the stem cells for my future transplantation. Clever little suckers they’ll be, boosting my immune system after the chemo knocks it and the bloody buggery MS out.
Chemotherapy is the game changer with HSCT, not the actual stem cells – but there you have it.
Neckline? Deadset uncomfortable but all for the greater good.
I visited a little with the other patients, but otherwise kept to myself and chatted online.
Strangely I slept really well knowing that today would be the day to harvest my stem cells. I was told it’d start at 7:00am but I was ready at 6:00am.
Show time started at 7:05am and I wasn’t allowed to really move and definitely not allowed not get out of bed and so I was hooked up and I waited and rested and chatted online, practiced some mindfulness + meditation and let the Asphresis machine (like dialysis ,but not) do it’s thing for 6+ hours.
At one point I got a chilly, wasn’t sure why? I pressed on the buzzer and one of my favourite nurses came in, name involves *Tanya* I think, but there’s a whole bunch more constants involved. Turns out I’d turned the radiator off but I had a 2nd comforter on my bed within 2 minutes and her tucking it in around my feet.
After lunch (though I’d avoided meals all morning) my stemmies were taken away by Dr Nikoli for analysis and I was tapped into another round of steroids.
If they got enough… 2 million, per kg of body weight (don’t ask me the total, that’s rude) the job was done, any less and I’m hooked up again tomorrow?
Well guess what? I’m delighted to report that we got 2.1 million stemmies blah blah blah. Dr Fedorenko came and told me himself. Happy tears from me. I think from him too. He was surprised as too, you see due to this being my second transplantation and having already used Cyclophosphamide and having had Mitoxantrone pulses earlier this year he was expecting me to take 2-3 days to get the numbers. Ha!
So then my neckline for this phase was taken out at about 8:00pm, just
in my room by the matron.
No anaesthetic just a few deep breaths and some pressure and pulling. Done.
Shower, stat but not above chest level.
Didn’t care, t’was good.
This afternoon Dr. Fedorenko was still surprised at today’s success and so is yet to decide. I’ll trust him and the process. That’s what’s best.
It could be a rest day, I could have my 2nd neckline (for chemo and transplantation) put in or I could have a spinal infusion of chemotherapy which is the kicker for my aggressive MS or it could be a combo of these processes.
Anyway I’m ok, and am surprising myself.